Core outcomes for Uterine Fibroids
We're bringing together people with lived experience of uterine fibroids, the clinicians who treat them, and researchers — to agree which outcomes future fibroid research should measure. Your voice helps set the priorities.
Our goal
Fibroid studies currently measure lots of different things, which makes them hard to compare — and they often miss what matters most to patients.
We're developing a "core outcome set": an agreed minimum list of outcomes that all future fibroid studies should report. We do this by asking patients, clinicians and researchers what matters most. The result is better, more comparable evidence — and better care.
Who can take part
- People with lived experience of uterine fibroids, and their partners or supporters
- Healthcare professionals who care for people with fibroids
- Researchers working in the uterine fibroid field
What's involved?
Two short, anonymous online survey rounds (about 10 minutes each). You rate how important each outcome is. In Round 2, you'll see how the whole group and your stakeholder group responded in Round 1 before giving your final view. Round 2 is offered only to people who complete Round 1.
Resources
New to core outcome sets, or want the detail behind this study? Start here.
Thanks
A collaborative study led by [PI / institutions]. Approved by Imperial College London (ref [RGIT ref]). Contact: [email]
Privacy
This website gives information about the uf:outcomes study and does not itself collect any personal data. If you choose to take part, the survey is hosted on Qualtrics (EU servers) and run by [PI / Imperial College London] under research ethics approval (ref [RGIT ref]). Your responses are handled as set out in the participant information and privacy notice shown before you begin.